Additional Resources
Web Link Categories
- Advanced Breast Cancer
- Advocacy
- African-Americans
- Asian Americans
- Caregivers
- Clinical Trials
- Complementary and Alternative Approaches
- Financial Support
- General Breast Cancer Information and Support
- General Cancer Information
- General Health Information
- Healthcare Professionals
- High Risk
- International
- Latinas
- Lesbians
- Male Breast Cancer
- Native Americans
- Quality of Life
- Recommended Reading
- Resource Directories & Healthcare Search Engines
- Side Effects
- Testing
- Treatments
- Workplace, Legal and Insurance Resources
- Young Women Affected by Breast Cancer
Web Links
Advanced Breast Cancer
Managed by Musa Mayer, an author and patient advocate, AdvancedBC.org offers online and printed resources for people living with advanced (metastatic) disease.
AdvancedBreastCancerCommunity.org
Living Beyond Breast Cancer is a partner in this website, which brings together organizations and resources focusing on metastatic breast cancer. This site will guide you to information and support that will empower you to take an active role in your treatment and care and connect you with others with a similar experience.
BCMets.org offers advanced (metastatic) breast cancer information and support.
This website offers women with metastatic breast cancer and their families a place to learn about brain metastases from a patient perspective. BrainMetsBC.org is a source for the latest information about this form of the disease, as well as for personal stories from women who’ve been there about what it’s like to be diagnosed and treated for "brain mets."
Valuable information for patients and families coping with serious, complex illness including a palliative care Provider Directory, a definition and detailed description of what palliative care is, direct links to palliative care-related organizations and more.
The MetaCancer Foundation provides resources and support for metastatic cancer survivors and their caregivers.
Metastatic Breast Cancer Network
Metastatic Breast Cancer Network (MBCN) is a national independent advocacy group of and for people with metastatic breast cancer. The MBCN intends to give metastatic breast cancer patients a greater voice in the breast cancer community.
Advocacy
National Breast Cancer Coalition
NBCC is a grassroots advocacy effort with the mission of eradicating breast cancer through action and advocacy.
The Research Advocacy Network works to bring together all participants in the medical research process for education, support and connecting patient advocates with the research community to improve patient care.
The purpose of this group, a collaboration of the Entertainment Industry Foundation and the American Association for Cancer Research, is to establish and support a focused and intense effort to effect changes in cancer research as quickly as possible. This site tells you about the group's efforts, the research it hopes to carry out and how you can help.
African-Americans
Breast Cancer Resource Committee/Rise Sister Rise
BCRC is dedicated to reducing the incidence and mortality from breast cancer among African-American women, particularly those who have little or no access to adequate health care and treatment.
The Intercultural Cancer Council (ICC) promotes policies, programs, partnerships, and research to eliminate the unequal burden of cancer among racial and ethnic minorities and medically underserved populations in the United States and its associated territories.
National Black Leadership Initiative on Cancer
The mission of the National Black Leadership Initiative on Cancer (NBLIC), an outreach initiative of the National Cancer Institute (NCI), is to positively influence the knowledge, attitudes and behaviors of African-Americans about cancer, ultimately closing the racial gap in the fight against cancer.
National Cancer Institute - Portal on Cancer Health Disparities
NCI supports research to identify and understand the factors that contribute to disparities. NCI also funds studies to develop and disseminate culturally appropriate interventions. Link to this NCI page for an overview of cancer health disparities, statistics, research, training opportinities and other resources about health disparities.
Sisters Network Inc. is committed to increasing local and national attention to the devastating impact that breast cancer has in the African-American community.
Asian Americans
AANCART seeks to build partnerships to increase cancer awareness, to promote greater accrual of Asian Americans in clinical studies, to increase training opportunities for Asian Americans and to develop pilot programs in four targeted regions: Los Angeles, New York, San Francisco and Seattle.
The Association of Asian Pacific Community Health Organizations (AAPCHO) is a national association representing community health organizations dedicated to promoting advocacy, collaboration and leadership that improves the health status and access of Asian Americans, Native Hawaiians and Pacific Islanders within the United States, its territories and freely associated states, primarily through their member community health centers.
Asian and Pacific Islander National Cancer Survivors Network
The mission of APIAHF is to enable Asian Americans and Pacific Islanders to attain the highest possible level of health and well-being.
The Intercultural Cancer Council (ICC) promotes policies, programs, partnerships, and research to eliminate the unequal burden of cancer among racial and ethnic minorities and medically underserved populations in the United States and its associated territories.
National Asian Women's Health Organization
NAWHO is a national nonprofit health organization with a mission to achieve health equity for Asian women and families.
National Cancer Institute - Portal on Cancer Health Disparities
NCI supports research to identify and understand the factors that contribute to disparities. NCI also funds studies to develop and disseminate culturally appropriate interventions. Link to this NCI page for an overview of cancer health disparities, statistics, research, training opportinities and other resources about health disparities.
SPIRAL: Selected Patient Information Resources in Asian Languages aims to increase electronic access to health information for consumers and healthcare providers by providing consumer information in Chinese, Cambodian, Vietnamese and Laotian. SPIRAL offers information on breast cancer and other health topics.
Caregivers
MABC is a national nonprofit organization providing targeted support services to educate and empower men to be effective caregivers when breast cancer strikes a female loved one and to target and mobilize men to be active participants in the fight against breast cancer.
Mothers Supporting Daughters with Breast Cancer
MSDBC is a national nonprofit organization providing free support services to help mothers who have daughters battling breast cancer.
Clinical Trials
Breastcancertrials.org matches the health history of the visitor to the eligibility criteria of participating clinical trials.
Coalition of Cancer Cooperative Groups provides up-to-date and accurate information about cancer clinical trials. Trialcheck is a free online navigation and matching system linking patients to unbiased cancer clinical trials. You may enter your zip code, diagnosis or age, and a tailored list of treatment trials is displayed. Trial information can be easily downloaded for discussion with a physician regarding potential for enrollment.
The NCI’s clinical trials page includes an excellent explanation of clinical trials, and suggestions on how to decide whether to participate in one. Find specific trials through its database, the Physician's Data Query (PDQ), and links to websites of cancer centers around the country.
This website enables you to learn about and search for clinical trials conducted by the National Cancer Institute (NCI) at the NIH Clinical Center in Bethesda, Maryland. These clinical trials represent the core of the clinical program of the NCI's Center for Cancer Research (CCR).
Complementary and Alternative Approaches
This website has been designed for patients to gather information about the benefits of massage performed by a trained massage therapist during treatment for cancer.
American Academy of Medical Acupuncture
The purpose of the American Academy of Medical Acupuncture is to promote the integration of concepts from traditional and modern forms of acupuncture with Western medical training to create a more sythesized, comprehensive approach to health care. It is the sole physician-only professional acupuncture society in North America.
The Annie Appleseed Project, a 501(c)(3) nonprofit corporation, provides information, education, advocacy, and awareness for people with cancer and their family and friends who are interested in complementary or alternative medicine (CAM) and natural therapies from a patient's perspective. They are an all volunteer organization.
DrWeil.com is a leading resource for education, information, products, services and philanthropic contributions based on the principles of integrative medicine.
Memorial Sloan-Kettering Cancer Center
Integrative Medicine Service's herbs and botanical information. This site provides objective information for oncologists and healthcare professionals, including a clinical summary for each agent and details about constituents, adverse effects, interactions, and potential benefits or problems.
National Center for Complementary and Alternative Medicine
NCCAM is dedicated to exploring complementary and alternative healing practices in the context of rigorous science, training complementary and alternative medicine (CAM) researchers and disseminating authoritative information to the public and professionals.
Office of Cancer Complementary and Alternative Medicine
The Office of Cancer Complementary and Alternative Medicine (OCCAM) coordinates and enhances the activities of the National Cancer Institute (NCI) with regard to complementary and alternative medicine (CAM). This website includes information on current clinical trials being done using complementary and alternative medicine.
The Herb Research Foundation is a source of information on the health benefits and safety of herbs and expertise in sustainable botanical resource development.
University of Texas Center for Alternative Medicine
UT-CAM is one of 11 research centers established by the National Center for Complementary and Alternative Medicine at the National Institutes of Health to evaluate alternative therapies. The University of Texas Center is the only OAM supported institution focused solely on alternative and complementary treatments for cancer, and is co-funded by the National Cancer Institute.
Vital Options International TeleSupport Cancer Network is a not-for-profit cancer communications, support and advocacy organization whose mission is to facilitate a global cancer dialogue by using communications technology to reach every person touched by cancer.
Financial Support
Avon Foundation Breast Care Fund
The Avon Foundation Breast Care Fund was created by the Avon Foundation to reach the women most in need of breast cancer screening and treatment services. Through the fund, financial support is made available to community-based programs providing education and outreach to medically underserved women, including low-income, older and minority women.
Run by the pharmaceutical company AstraZeneca, this website offers information about the manufacturer's patient assistance programs to help people with little or no health insurance gain. Among the medicines produced by AstraZeneca are Arimidex (anastrozole), Faslodex (fulvestrant) and Zoladex (goserelin).
The Brenda Mehling Cancer Fund supports people ages 18-40 during cancer treatment by providing services to meet daily needs not covered by insurance. Typical grants cover $600 worth of medical co-payments, rent and mortgage, transportation, car insurance, repairs and groceries.
For more than 60 years, CancerCare has provided financial assistance to help with some types of costs, including transportation, homecare, childcare and pain medication. CancerCare’s social workers and case managers are well trained in financial issues and will work closely with you to get you the help you need.
Centers for Medicare and Medicaid Services (CMS)
This government Web site provides information about the federal programs Medicaid and Medicare. Medicaid is run by the states, and each state sets its own guidelines on eligibility and services; it is available to eligible low-income people and families. Medicare covers people age 65 or older and people under age 65 with certain disabilities.
Corporate Angel Network arranges free air transportation for cancer patients traveling to treatment using the empty seats on corporate jets.
FamiliesCAN provides the families of cancer patients who are being treated in Santa Clara County, CA, with financial assistance and hands-on support in managing their non-medical expenses during the treatment and recovery period.
The Healthwell Foundation is a nonprofit, charitable organization that helps individuals afford prescription medications for specific illnesses. The foundation provides financial assistance to eligible people to cover certain out-of-pocket healthcare costs, including prescription medicine coinsurance, co-payments and deductibles; health insurance premiums; and other selected out-of-pocket healthcare costs.
Hill-Burton grants federal funds to hospitals for infrastructure needs. Hospitals that receive Hill-Burton funds are required by law to provide services to those who cannot afford to pay for hospitalization. Brochures are available in Spanish and English.
LifeLines of Care Patient Assistance Foundation
The Bristol-Myers Squibb Patient Assistance Foundation provides temporary assistance to qualifying people with a financial hardship who generally have no private prescription insurance and are not enrolled in a government health care program like Medicaid or Medicare. Medicines manufactured by Bristol-Myers Squibb include Ixempra (ixabepilone) and Sprycel (dasatinib).
National Breast and Cervical Cancer Early Detection Program
The National Breast and Cervical Cancer Early Detection Program (NBCCEDP), run by the federal Centers for Disease Control, provides access to critical breast and cervical cancer screening services for underserved women in the United States.
NeedyMeds.com is a nonprofit organization that helps people who cannot afford medicine or the costs of health care. The site offers links to patient assistance programs, government programs and other groups that help you find ways to pay for treatment.
Partnership for Prescription Assistance
The Partnership for Prescription Assistance brings together America’s pharmaceutical companies, healthcare providers, patient advocacy organizations and community groups to help low income patients who lack prescription coverage get the medicines they need at little or no cost.
Patient Access Network Foundation
An independent, nonprofit group, the Patient Access Network Foundation is dedicated to assisting those who cannot afford the out-of-pocket costs associated with treatment needs. Throughout all 50 states and three U.S. territories PANF provides trained case managers that you or your advocates may speak with about your care.
The Patient Advocate Foundation is a national nonprofit organization that provides professional case management services to Americans with chronic, life-threatening and debilitating illnesses. PAF case managers serve as active liaisons for you and your insurers, employers or creditors to resolve insurance, job retention and debt crisis matters as they relate to your diagnosis.
This website from Pfizer lists the pharmaceutical company's patient assistance programs for people who do not have health insurance or prescription coverage. Medicines manufactured by Pfizer include Aromasin (exemestane), Ellence (epirubicin) and Sutent (sunitinib).
The SAMFund is a unique non-profit organization created to assist young adult survivors of cancer with a successful transition into their post-treatment life, by providing financial support through the distribution of grants and scholarships.
General Breast Cancer Information and Support
Alamo Breast Cancer Foundation
ABCF is a nonprofit organization whose purposes are to provide support and information by trained peer volunteers via the Breast Cancer Helpline, to help educate the public on the importance of early detection and breast self-exam, and to participate in community outreach programs.
Breast Cancer Network of Strength
The mission of Breast Cancer Network of Strength is to ensure, through information, empowerment and peer support, that no one faces breast cancer alone.
BCN features up-to-date breast cancer-related news and links to organizations and sites of interest to breast cancer survivors. You can also register to receive a free e-mail newsletter, which comes out nearly every day, to alert you to breast cancer news stories.
Breastcancer.org is a nonprofit organization for breast cancer education. The site contains medical information, research news, a celebrity talking dictionary, pictures of breast cancer, discussion boards, open chat rooms and more.
BreastCancerStories.com is a new online community where breast cancer patients can stay in touch with friends, family and one another as they go through this challenging journey.
Cancer101's mission is to empower patients and those affected by breast cancer to take control of their diagnosis by providing them with the necessary armor they need to fight this disease: organizational tools and resources that meet their individual needs. They meet patients on the front line and turn what is often a chaotic experience into a calm plan of attack.
Cancer101 recently produced a 10-step series of podcasts which provide women diagnosed with breast cancer immediate reassurance and a plan to cope. Access them at http://www.podcastgo.com/Channel.aspx?nid=dfae0172-7d95-43dd-9945-bd42aa4102c2.
Dr. Susan Love Research Foundation
The mission of the Dr. Susan Love Research Foundation is to eradicate breast cancer and improve the quality of women's health through innovative research, education and advocacy.
HER Move brings together a unique offering of health and wellness information to inspire women with HER2-positive breast cancer to join a ‘movement’ and discover how to live a full life with breast cancer.
This site is dedicated to inspiring other women to find new sources of support through a HER2 Sisterhood.
This website is the only online support group dedicated to women diagnosed with HER2/neu positive breast cancer.
Hurricane Voices raises public consciousness, incites action and breaks down the barriers to progress in pursuit of the causes and cures for breast cancer through public awareness campaigns, educational programs and grant making and sponsorships.
The IBC support website answers questions about inflammatory breast cancer and provides support for people diagnosed with inflammatory breast cancer.
Inflammatory Breast Cancer Research Foundation
The IBC Research Foundation is the only cancer research organization that specifically targets IBC and the research to find its cause.
MAMM magazine is devoted to meeting the needs of women diagnosed with breast and reproductive cancer.
Pink-Link Online Breast Cancer Support Network
The Pink-Link Breast Cancer Support Network provides valuable community and support resources for breast cancer patients and survivors, as well as the family, friends, medical community, and other caretakers of breast cancer patients and survivors.
SHARE offers survivor-led support to those affected by breast or ovarian cancer. Services include hotlines in English and Spanish, with capacity in 12 other languages; support groups; wellness programs; educational meetings; and advocacy activities.
The Susan G. Komen Breast Cancer Foundation
The mission of the Komen Foundation is to eradicate breast cancer through research, education, screening and treatment.
TheBreastCareSite.com was developed to address the general needs of all who have been touched by breast cancer, including newly diagnosed patients and long time survivors, as well as their friends, family members and coworkers. Their mission focuses on providing breast cancer survivors with accurate information about everything from post-surgery options and products to information about insurance and intimacy issues.
"Tlc" Tender Loving Care is the American Cancer Society's new ecommerce--enabled website. "Tlc" offers products for women with cancer with treatment-related hair loss, as well as special products for women diagnosed or recovering from breast cancer.
Triple Negative Breast Cancer Foundation
This newly created organization seeks to ignite interest in the study of triple-negative (ER-/PR-/HER2-) breast cancer among researchers, physicians, educators and scientists; support professionals seeking to identify the causes and discover new and effective treatment options; and increase public awareness and support of this type of breast cancer.
U.S. News & World Report Breast Cancer Center
The U.S. News & World Report Breast Cancer Center, launched in conjunction with the Mayo Clinic, contains an overview of the causes, risk factors and types of breast cancer. It also has information about breast cancer prevention, symptoms, tests, treatment and management.
The mission of WomenStories is to inspire, inform and support breast cancer patients by documenting and sharing survivors' experiences. WomenStories is a series of videos in which breast cancer survivors offer emotional support and advice that women need and value.
General Cancer Information
American Association for Cancer Research
AACR is the oldest and largest scientific organization in the world focused on every aspect of cancer research. Programs and services foster the exchange of knowledge and new ideas among scientists dedicated to cancer research, provide training opportunities for the next generation of cancer researchers, and increase public understanding of cancer.
ACS maintains a website with access to information about all types of cancer, news stories, research information, statistics, alternative approaches, and tips for living with cancer. A nice feature of this site is the section on how to tell children about a parent’s cancer diagnosis.
American Institute for Cancer Research
The American Institute for Cancer Research fosters research on diet and cancer prevention and educates the public about the results.
American Society of Clinical Oncology
ASCO is a resource for people affected by cancer, doctors and researchers. The website includes general cancer information and cancer news items.
Aurora Imaging Technology, Inc.
Aurora is the developer and manufacturer of the AURORA, the world’s first Dedicated Breast MRI system.
The mission of Cancer Consultants is to provide the most up-to-date cancer information on the treatment and prevention of cancer for consumers and professionals.
Cancer Hope Network is a national, nonprofit organization which offers free, confidential, one-on-one emotional support to adult cancer patients and their caregivers.
Cancer.Net is the patient-information website of the American Society of Clinical Oncology and is designed to help patients and families make informed healthcare decisions.
CancerCare is a national non-profit organization whose mission is to provide free professional help to people with all cancers through counseling, education, information and referral and direct financial assistance.
This website provides cancer information and community by informing, connecting and empowering cancer survivors.
CURE: Cancer Updates, Research & Education
CURE is a free magazine for people with cancer, survivors and caregivers that combines the science and humanity of dealing with the cancer experience. Visit CURE’s website to read current and past issues.
Frankly Speaking About Cancer with The Wellness Community
During podcasts of Frankly Speaking About Cancer with The Wellness Community, Kim Thiboldeaux, the President and CEO of The Wellness Community, talks about how to live a better life with cancer. The program features patients, physicians, researchers, social workers and caregivers with whom listeners can connect and draw inspiration. Episodes tackle critical issues such as: achieving the best care and quality of life, new research and treatments, relieving stress and anxiety, life beyond treatment and talking to kids about cancer.
Fred Hutchinson Cancer Research Center Survivorship Program
Fred Hutchinson Cancer Research Center's Survivorship Program provides clinical care, patient education and research opportunities to patients who have survived cancer and are not in active cancer treatment or are in long-term therapy to prevent recurrence.
The mission of the Lance Armstrong Foundation is to inspire and empower people with cancer to live strong. They serve their mission through education, advocacy, public health and research programs.
The Mesothelioma Cancer Center is an educational resource for those affected by asbestos exposure. Their website contains information on the various types of asbestos and the health hazards of those types, as well as details on mesothelioma symptoms, stages and all known treatments. They also feature a section dedicated specifically to the unique relationship between asbestos and women, as well as that between asbestos and breast cancer.
Myriad Genetic Laboratories is a leader in cancer predisposition testing.
NCI has a comprehensive web site with a wealth of information, including basic cancer facts, cancer news and research. You can also access information about clinical trials directly at the clinical trials page, which includes an excellent explanation of clinical trials, and suggestions on how to decide whether to participate in one. Find specific trials through its database, the Physician's Data Query (PDQ), and links to websites of cancer centers around the country.
The University of Pennsylvania's Cancer Center runs OncoLink, which provides comprehensive information about specific types of cancer, updates on cancer treatments and news about research advances.
Shop Well With You is a national nonprofit organization dedicated to improving the quality of life for women affected by cancer. This website helps people heal by offering guidance on how to use clothes as a tool to achieve a sense of well-being, comfort and confidence.
The Wellness Community is a nonprofit organization dedicated to providing free emotional support, education and hope for people with cancer and their loved ones.
Vital Options International TeleSupport Cancer Network is a not-for-profit cancer communications, support and advocacy organization whose mission is to facilitate a global cancer dialogue by using communications technology to reach every person touched by cancer.
A National Cancer Institute designated comprehensive cancer center for over 30 years, Yale Cancer Center is one of only 39 Centers in the nation and the only comprehensive center in Southern New England.
General Health Information
This website features up-to-date news, in-depth special reports, and summaries from major professional conferences on a broad range of topics pertaining to general health issues.
Medline Plus Health Information
MedlinePlus brings together authoritative information from NLM, the National Institutes of Health (NIH), and other government agencies and health-related organizations. MedlinePlus also has extensive information about drugs, an illustrated medical encyclopedia, interactive patient tutorials, and latest health news.
myNDMA (my National Digital Media Archive) was created specifically for patients to securely handle their important medical images such as mammograms and MRIs, along with actual reports and data.
The National Institutes of Health (NIH), a part of the U.S. Department of Health and Human Services, is the primary Federal agency for conducting and supporting medical research.
VoiceAmerica Network's Health & Wellness Channel
Live Internet talk radio with a focus on health and wellness.
WebMD.com is a comprehensive general health resource featuring an online library, news, message boards and online chat events.
Healthcare Professionals
American Society of Breast Disease
ASBD serves healthcare professionals involved in the prevention, early detection, treatment and research of breast disease and advocates for a multidisciplinary team approach to breast health management.
American Society of Clinical Oncology
ASCO is a resource for people affected by cancer, doctors and researchers. The website includes general cancer information and cancer news items.
Lymphology Association of North America
The Lymphology Association of North America (LANA) is a non-profit corporation composed of healthcare professionals. The purpose of the organization is to promote standards for management of individuals with Lymphedema and or related disorders, to establish and maintain certification for medical professions who provide such services, and to promote the awareness and science of lymphology.
The Oncology Nursing Society is a professional organization of more than 32,000 registered nurses and other healthcare providers dedicated to excellence in patient care, education, research and administration in oncology nursing.
San Antonio Breast Cancer Symposium
This annual meeting provides state-of-the-art information on the experimental biology, etiology, prevention, diagnosis and therapy of breast cancer and pre-malignant breast disease to an international audience of academic and private physicians and researchers.
High Risk
Bright Pink is a unique resource providing support to young women who are at high risk for breast and ovarian cancer.
Facing Our Risk of Cancer Empowered
FORCE is a nonprofit organization for women who are at high risk of developing breast and ovarian cancer because of family history and genetic status and for members of families in which a BRCA mutation may be present.
International
Atlantic Breast Cancer Net, a web-based community news and information portal, is an initiative of Breast Cancer Action Nova Scotia.
CBC is the United Kingdom’s leading cancer support service for the black and minority ethnic community.
EUROPA DONNA, The European Breast Cancer Coalition, works to raise awareness of breast cancer and to mobilize the support of European women in pressing for improved breast cancer education, appropriate screening, optimal treatment and care and increased funding for research.
Latinas
American Cancer Society (Spanish)
ACS maintains a website with access to information about all types of cancer, news stories, research information, statistics, alternative approaches, and tips for living with cancer.
Breast Cancer Network of Strength (Spanish)
The mission of Breast Cancer Network of Strength is to ensure, through information, empowerment and peer support, that no one faces breast cancer alone.
Día de la Mujer Latina (English and Spanish)
The mission of Día de la Mujer Latina, Inc. is to promote health awareness to the underserved Latino community by providing an ethnic-specific education, a culturally appropriate setting for early detection screening and prevention care, and resource information for follow-up services.
Institute for Health Promotion Research
The IHPR researches the causes and solutions to the unequal impact of cancer and chronic disease affecting residents in San Antonio, South Texas, and the nation to improve overall health, especially that of people at a disadvantage due to race/ethnicity, education, income or access to care.
Intercultural Cancer Council (English)
The Intercultural Cancer Council (ICC) promotes policies, programs, partnerships and research to eliminate the unequal burden of cancer among racial and ethnic minorities and medically underserved populations in the United States and its associated territories.
Lance Armstrong Foundation (Spanish)
The mission of the Lance Armstrong Foundation is to inspire and empower people with cancer to live strong. They serve their mission through education, advocacy, public health and research programs.
Latin American Health Institute
The Latin American Health Institute (LHI) focuses on strengthening families and developing community resources. LHI works with numerous public and private organizations across a wide range of issues in five programmatic areas: research, policy, education, service and technical assistance.
Latinas Contra Cancer (LCC) was founded to address the void in culturally and linguistically sensitive programs that meet the health care needs of Latinos around issues of cancer.
Medline Plus Health Information (Spanish)
MedlinePlus brings together authoritative information from NLM, the National Institutes of Health (NIH) and other government agencies and health-related organizations. MedlinePlus also has extensive information about medications, an illustrated medical encyclopedia, interactive patient tutorials, and latest health news.
National Alliance for Hispanic Health
The mission of the National Alliance for Hispanic Health is to improve the health and well being of Hispanics.
National Cancer Institute (NCI) (Spanish)
NCI has a comprehensive website with a wealth of information, including basic cancer facts, cancer news and research. You can also access information about clinical trials directly at the clinical trials page, which includes an excellent explanation of clinical trials, and suggestions on how to decide whether to participate in one. Find specific trials through its database, the Physician's Data Query (PDQ), and links to websites of cancer centers around the country.
National Cancer Institute - Portal on Cancer Health Disparities
NCI supports research to identify and understand the factors that contribute to disparities. NCI also funds studies to develop and disseminate culturally appropriate interventions. Link to this NCI page for an overview of cancer health disparities, statistics, research, training opportinities and other resources about health disparities.
National Institutes of Health (Spanish)
The National Institutes of Health (NIH), a part of the U.S. Department of Health and Human Services, is the primary federal agency for conducting and supporting medical research.
Redes En Acción: The National Hispanic/Latino Cancer Network is a National Cancer Institute-funded initiative to combat cancer among Latinos.
Lesbians
National Cancer Institute - Portal on Cancer Health Disparities
NCI supports research to identify and understand the factors that contribute to disparities. NCI also funds studies to develop and disseminate culturally appropriate interventions. Link to this NCI page for an overview of cancer health disparities, statistics, research, training opportinities and other resources about health disparities.
The LGBT Cancer Project is the first national program addressing the needs of gay, lesbian, bisexual & transgender people with cancer and those at risk.
The Mautner Project, The National Lesbian Health Organization
The Mautner Project educates lesbians about their health, trains healthcare providers about their lesbian patients and provides information on how to achieve better health outcomes for lesbians.
Male Breast Cancer
ACS maintains a website with access to information about all types of cancer, news stories, research information, statistics, alternative approaches, and tips for living with cancer. The website includes a detailed guide for male breast cancer, including key statistics, risk factors, diagnosis, treatment and prevention.
Native Americans
The Intercultural Cancer Council (ICC) promotes policies, programs, partnerships and research to eliminate the unequal burden of cancer among racial and ethnic minorities and medically underserved populations in the United States and its associated territories.
National Cancer Institute - Portal on Cancer Health Disparities
NCI supports research to identify and understand the factors that contribute to disparities. NCI also funds studies to develop and disseminate culturally appropriate interventions. Link to this NCI page for an overview of cancer health disparities, statistics, research, training opportinities and other resources about health disparities.
Native American Cancer Research Corporation
The Native American Cancer Research Corporation seeks to reduce Native American cancer incidence and mortality and to increase survival from cancer among Native Americans.
The Native American Women’s Health Education Resource Center
The Native American Women’s Health Education Resource Center addresses pertinent issues of health, education, land and water rights and economic development of Native American people.
Quality of Life
This website contains information on retreats, spa opportunities, labyrinths, workshops and conferences to help you move toward survivorship and recovery.
Recommended Reading
By Ruth Peltason
I Am Not My Breast Cancer gathers the warm, loving, frank, and informed voices of more than 800 women—from every state in the nation and from continents as far away as Australia and Africa—who reveal their fears, trade advice, share experiences, and express their deepest, most intimate concerns.
by Cindy Papale-Hammontree and Sabrina S. Hernandez
Cindy Papale openly shares her own very personal story from shock at the moment of diagnosis, through the terror of making decisions about treatment and the fears one faces with this diagnosis. A group of specialists also write chapters on everything you would ever want to know about this illness. The authors take the mystery and the fear out of breast cancer by making the diagnosis and what happens familiar. In addition to Cindy’s story, there are other deeply personal accounts of what it is like to deal with breast cancer.
By Jackson Hunsicker
In an effort to challenge our perception of what cancer looks like, fifty-nine well-known photographers have donated their time to take pictures of women bald from chemotherapy.
Resource Directories & Healthcare Search Engines
Provides information and treatment options for male and female with sections on self exams, mammograms, mastectomy surgeries and more.
A directory of websites related to breast cancer.
Articles, information and resources on breast cancer.
OncologySTAT integrates a multitude of professional cancer information sources, such as peer-reviewed research, news and regulatory updates, a professional drug monograph and interactions database, chemotherapy regimens, and conference coverage into one online destination. Information and educational materials are delivered across multiple media formats: text, audio, video, interactive, user-generated forums, etc. to gain immediate integrated access to the latest evidence-based research, news, treatment, and decision support information.
Side Effects
Alliance of State Pain Initiatives
Formerly called the American Alliance of Cancer Pain Initiatives, the Alliance of State Pain Initiatives is a national network of interdisciplinary, state-based organizations dedicated to improving pain management. The site includes a downloadable brochure on cancer pain and links to resources on pain management.
The American Pain Foundation serves people with pain through information, advocacy, and support. APF's mission is to improve the quality of life of people with pain by raising public awareness, providing practical information, promoting research and advocating to remove barriers and increase access to effective pain management. The website contains a "spotlight on cancer pain" section that provides information, coping strategies and tools to help you and your caregivers understand the basics of pain management and better communicate with your doctors.
An online information resource and support group for those with lymphedema and for the family, friends, and therapists who care for them.
Lymphology Association of North America
The purpose of this organization is to promote standards for management of individuals with Lymphedema and or related disorders, to establish and maintain certification for medical professions who provide such services, and to promote the awareness and science of lymphology. You can search for certified specialists by state.
The National Lymphedema Network (NLN) is an internationally recognized non-profit organization founded in 1988 to provide education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on the prevention and management of primary and secondary lymphedema. The NLN is supported by tax-deductible donations and is a driving force behind the movement in the U.S. to standardize quality treatment for lymphedema patients nationwide. In addition, the NLN supports research into the causes and possible alternative treatments for this often incapacitating, long-neglected condition.
The Northwest Lymphedema Center is a nonprofit organization founded in 1993 by JoAnn Rovig, lymphedema specialist, to educate lymphedema sufferers and help them meet the challenges of this condition through self-massage classes, instructional videos, and other educational materials.
Testing
This site features information on Oncotype DX™, a breast cancer test from Genomic Health that can help individualize breast cancer treatment. Oncotype DX predicts the likelihood of breast cancer recurrence in women with newly diagnosed, early stage invasive breast cancer, and assesses the benefit from certain types of chemotherapy. This information can help doctors tailor breast cancer treatment on an individual basis.
Treatments
BreastReconstruction.org was created to help empower women to make informed choices about breast reconstruction.
This website provides the latest information about chemotherapy, chemo side effects and chemotherapy drug information to patients and their families, caregivers and friends.
RT Answers was created by the American Society for Therapeutic Radiology and Oncology to explain how radiation therapy is used to treat cancer.
Workplace, Legal and Insurance Resources
Breast Cancer Legal Advocacy Initiative
Created by The American Bar Association's Commission on Women in the Profession, this public education initiative is designed to protect the legal rights of people affected by breast cancer.
Cancer and Careers is committed to changing the face of cancer in the workplace by providing a comprehensive website, free publications, and a series of support groups and educational seminars for employees with cancer.
Legal Clinic for the Disabled, Inc.
The Legal Clinic for the Disabled is a 501(c)(3) nonprofit corporation with offices at Magee Rehabilitation Hospital. They provide free legal services to low-income people with physical disabilities in Philadelphia, Bucks, Chester, Delaware and Montgomery Counties, Pennsylvania. Of particular interest, their Law & Health Initiative for Cancer Survivors (a program funded by the Lance Armstrong Foundation) provides free legal representation and advice to low-income cancer survivors and outreach to medical providers and caregivers on legal issues affecting the health, safety, families and well-being of cancer survivors, including health care coverage, public and private disability benefits, family law, powers of attorney, wills, living wills, housing and employment.
The Lance Armstrong Foundation (LAF) and Benefit Alliance recently launched the LIVESTRONG Benefit Solution - an optional supplementary healthcare plan that will benefit people affected by cancer.
This website, sponsored by the National Council on the Aging (NCOA) and the Access to Benefits Coalition (ABC), is designed to help individuals learn more about the Medicare Prescription Drug Coverage.
Patient Advocate Foundation is a national nonprofit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.
Young Women Affected by Breast Cancer
Bright Pink is a unique resource providing support to young women who are at high risk for breast and ovarian cancer.
Cooper University Hospital | Cancer and Pregnancy
Information for pregnant women who find out they have cancer from Cooper University Hospital, a provider of comprehensive health services, medical education and clinical research in Southern New Jersey and the Delaware Valley.
Fertile Hope is a national nonprofit organization dedicated to providing reproductive information, support and hope to patients whose medical treatments present the risk of infertility.
A resource portal for young adults with cancer.
Marjorie E. Korff PACT Program
The Marjorie E. Korff PACT Program is a unique parenting program developed at the Massachusetts General Hospital Cancer Center to address the common challenges and needs of parents with cancer.
Pregnant with Cancer connects women who are pregnant and newly diagnosed with other women who have gone through similar experiences.
Sharsheret provides culturally sensitive support to young Jewish women who are newly diagnosed with breast cancer as well as to those facing the risk of developing breast cancer, and offers related resources for Jewish communities and healthcare organizations.
The SAMFund is a unique non-profit organization created to assist young adult survivors of cancer with a successful transition into their post-treatment life, by providing financial support through the distribution of grants and scholarships.
Thrive is dedicated to providing support, services, and education to young women in the greater Boston area who have been diagnosed with breast cancer.
Ulman Fund for Young Adults with Cancer
The Ulman Fund provides support programs, education and resources free of charge to benefit young adults, families and friends affected by cancer and to promote awareness and prevention of cancer.
The Young Survival Coalition is the only international, non-profit network of breast cancer survivors and supporters dedicated to the concerns and issues that are unique to young women and breast cancer.
